The New York State Education Department
Office of Vocational and Educational Services for
Individuals with Disabilities
Special Education Policy, Planning and Partnerships

 

The Availability and Effectiveness of Programs for Preschool Children with Autism


A Report to the Board of Regents,
The Governor and
The New York State Legislature

March 2004


Table of Contents

Executive Summary

Study of the Availability and Effectiveness

Major Findings

Conclusions

Regional Analysis


Executive Summary

This report has been developed to comply with Chapter 405 of the Laws of 1999 to report on the availability and effectiveness of approved programs providing special education services to preschool children with autism. The information in this report was obtained through a study conducted by the State University of New York (SUNY) at Albany: Report on the Availability and Effectiveness of Preschool Programs for Children with Autism in New York State.

When viewed from a statewide perspective, there appears to be sufficient availability of preschool programs for children with autism. However, select areas of the State are reporting limited capacity to serve additional students with autism and the growing trend in the numbers of identified children with autism is expected to significantly impact the availability of programs in the future. A combination of many factors (e.g., program model, instructional approach and expertise) affect program availability for preschool children with autism. The study findings regarding program effectiveness, based on the demonstration that programs address important components of educational practices, suggest that special education programs in New York State (NYS) that serve large numbers of preschool students with autism are meeting the educational needs of these students in key programmatic areas. However, select areas of need were identified to improve effectiveness in the areas of family involvement and support, community collaboration and opportunities for inclusion. One particular model of service or instructional approach was not found to be notably more effective than another on the dimensions measured by the Autism Program Quality Indicators (APQIs).

While current statewide capacity to serve preschoolers with autism is generally available, further regional analysis and follow-up are necessary. Many preschool programs need to consider a shift in the capacity of their programs to focus on the needs of children with autism. The distribution of particular service and program models needs to be addressed, with a goal of making a greater variety of service options available for preschoolers and young school-age children with autism. The policies of the State Education Department (SED) and the Department of Health (DOH) need to address program concerns relating to the transition of children with autism from the early intervention system to preschool special education programs.

To address program effectiveness findings, approved programs need to enhance their capacity to assist parents in understanding the special needs of their children with autism and in acquiring the skills to support the implementation of their child’s individualized education program (IEP). Opportunities for children with autism to generalize skills acquired in the formal context of a preschool program need to be expanded. Additional resources for preschool programs to access training and technical assistance initiatives would serve to increase program availability and enhance program expertise to serve preschoolers with autism.


Study of the Availability and Effectiveness of Preschool Programs for Children with Autism in New York State

SED was directed by the State Legislature’s passage of Chapter 405 of the Laws of 1999 to report on the availability and effectiveness of approved programs providing education services to preschool children with autism. In response, SED contracted with SUNY at Albany to conduct this study. The following sections of this report describe the major findings and policy/program implications based on the Report on the Availability and Effectiveness of Preschool Programs for Children with Autism in New York State." 1

Definition of Terms

To report on the availability and effectiveness of programs for preschool children with autism, it was necessary to identify the number of preschool children with autism in NYS. In this State, a preschool child aged three to five who is eligible to receive special education services is classified as a "preschool student with a disability" [section 200.1(ee) of the Regulations of the Commissioner of Education]. School district committees on preschool special education (CPSE) identify eligible preschool students with disabilities using this general term and not by a specific disability category or classification. Consequently, existing State and local school data do not specifically identify the numbers of preschool children with autism. To determine the prevalence of preschool students with autism, the study provided an operational definition of the term "preschooler with autism," as follows:

A child having a developmental disability affecting verbal and nonverbal communication and social interaction who may have behavioral characteristics associated with autism such as engagement in repetitive activities and stereotypical movements, resistance to environmental change or change in daily routines, and unusual responses to sensory experiences; and who is likely to be classified as having autism upon reaching school age.

This term was used as the basis for CPSE chairpersons and directors of NYS approved preschool special education programs to estimate the numbers of children with autism determined eligible for preschool special education and enrolled in the approved preschool programs during the period of the study.

Preschool special education programs in NYS are approved to serve "preschool students with disabilities" as defined in section 4410 of the Education Law and section 200.1(ee) of the Regulations of the Commissioner of Education. This means that preschool programs are not approved to serve specific categories of disabilities (e.g., autism) and, therefore, the identification of specific programs required the study to rely on self reports from approved preschool programs and CPSE chairpersons.

SED approves three program models for preschool students with disabilities: special class, special class in an integrated setting (SC/IS) and special education itinerant teacher services (SEIT). (Those providers that offered only SEIT and/or related services, but did not also provide classroom-based services were not included in the study.)

To identify the number and location of preschool programs in the State that serve preschool children with autism, the study investigated availability in terms of the different program models, capacity, expertise and instructional approaches. The following operational definitions were used for program capacity, program effectiveness, expertise and instructional approaches.

Program directors of approved preschool programs serving five or more students were asked if additional students with autism could have been served on June 1, 2001. A program’s capacity to serve additional students with autism is reported as a percentage generated by dividing the number of students enrolled in the program by the number of students that a program was approved to serve by SED. [Note: Study results relating to "program capacity" must be interpreted cautiously, since approved preschool programs must, for fiscal viability reasons, operate at or near approved capacity by June 1st of the school year. Over 50 percent of preschool students exit approved preschool programs by July 1 or September 1, thereby creating vacancies for the new school year.]

To determine "expertise," each Director of a program serving five or more children with autism was asked the extent to which the program had a specific expertise in educating children with autism on a scale ranging from "not at all" to "completely."

Since theoretical and instructional approaches are an important factor in consideration of program placement, directors of approved preschool programs serving five or more children were asked to identify the primary and secondary theoretical and instructional approaches used with preschool students with autism. These included:

These terms were not further defined since it was assumed that due to their common usage, providers would be familiar with their meaning.

Study Methodology

A number of methods were used to determine the availability and assess the effectiveness, or the quality of programs and services, for preschool students with autism in NYS.

Major Findings

The following provides a summary of the major study findings with suggested policy and program implications statewide. The summary reflects global findings and implications based on cumulative reports of the ten regions of the State.


The study results present a "picture in time" based on the responses to the different surveys and site visits. The major findings and State implications for policy and program development must be viewed within this context.

Availability

Preschool Children with Autism

Number of Preschool Programs for Children with Autism

Of the preschool programs that responded to the survey:

Service models in which preschool children are served

Based upon reports from program directors and CPSE chairpersons that responded to the survey, during the 2000-01 school year, preschoolers with autism were served as follows:

Factors impacting the availability of programs and services for preschool children with autism

Theoretical and instructional models available in these programs

Of the preschool programs that responded to the survey:

Expertise in serving children with autism

Capacity

Note: Capacity (the potential to serve additional students with autism) was studied to determine if there may be a correlation between availability based on expertise and the type of model and instructional approaches used by a program. However, programs must operate at full capacity for fiscal viability purposes. The implications derived from assessing program vacancies at the end of the school year are limited.

Program Effectiveness   4

Effectiveness was defined on the basis of the extent to which a sample of programs across the State met the quality indicators of effective programs of students with autism as assessed through the APQI based on (1) self reviews by approved programs; (2) ratings by CPSE chairpersons; (3) ratings by parents and (4) ratings by site reviewers.

Program Models and Quality Indicators

Instructional Approaches and Quality Indicators

Parental Ratings on Program Effectiveness

Least Restrictive Environment (LRE)


Conclusions
Summary Findings Regarding Availability and Effectiveness

When viewed from a statewide perspective, there appears to be sufficient availability of preschool programs for children with autism. However, select areas of the State are reporting limited capacity to serve additional students with autism and the growing trend in the numbers of identified children with autism is expected to significantly impact the availability of programs in the future. A combination of many factors (e.g., program model, instructional approach, expertise) affect program availability for preschool children with autism.

The findings regarding program effectiveness as reported in the Report on the Availability and Effectiveness of Preschool Programs for Children with Autism in New York State were based on the demonstration that programs address important components of educational practices. The findings suggest the following:

Policy and Program Implications

As a result of the findings of the study and discussions with regional SED staff, the following implications for policy and program development for preschool children with autism have been identified.

Program Availability:

Program Effectiveness:

State Initiatives Relating to Autism

While much is now known about autism and the benefits of early diagnosis and appropriate education, widespread practice of effective educational interventions has been slow to follow. In New York State, some significant efforts have been made in recent years to address the unique needs of children with autism through the following SED sponsored initiatives.

Technical Assistance, Training and Support: The New York Autism Network (NYAN)

From 1997 to 2002, SED funded NYAN, which was comprised of four regional technical assistance outreach centers. The four centers of NYAN were coordinated through SUNY at Albany. NYAN provided outreach and information to parents and school personnel statewide relating to the education of students with autism. These centers assisted educators and parents to better understand effective methods, program structures and other considerations for developing services and supports to meet the needs of individual students; and promoted regional collaboration in providing information, training and technical assistance on effective educational approaches for students with autism.

State of the State Meeting on Autism

In 1999, a State of the State Meeting on Autism was conducted by NYAN to identify statewide issues on the education of students with autism. Data and other information were presented on issues affecting parents of children with autism, teachers and other school personnel and teacher preparation programs. As a result of this meeting, SED, in consultation with a State Task Force on the Education of Students with Autism, implemented a comprehensive plan to address issues related to quality educational services to students with autism. The goal of the activities is to improve results for students with autism by:

Autism Program Quality Indicators

NYAN developed "Autism Program Quality Indicators" (APQI) which reflect research-based components linked to high quality and effective educational programs for students with autism in the areas of evaluation; individualized education program (IEP) development; curriculum; instructional activities; instructional methods; instructional environments; progress monitoring; family involvement and support; inclusion; transitions; behavior; community collaboration; personnel resources and program evaluation. The APQI serve as a self-review and quality improvement guide for schools and programs serving students with autism spectrum disorders. The APQI also help parents to identify those features of educational supports and services that combine to result in effective programs, regardless of specific methodologies used. The APQI, with permission from SED, are now also being used in schools in Utah, Tennessee, South Carolina, Hawaii, California, New Jersey, Idaho, Indiana, Canada and France.

Preservice and Inservice Courses

The results of a survey of colleges and universities in New York State (NYAN, 1999) showed that with few exceptions, undergraduate education does not specifically prepare teachers to work with students with autism. When instruction is provided on autism, it tends to be as a component of general special education content or methods courses. Supervised field experiences with students with autism is rarely offered systemically. Where courses are offered, they are often at the graduate level, primarily in psychology degree programs. In some regions of the State, courses in autism for teachers and paraprofessionals were not available at all.

As a result, teachers were graduating from our colleges and universities with limited understanding of autism as a disability category and with limited exposure to effective ways to provide instruction to such students. To respond to the need for teachers and paraprofessionals to be provided with specific knowledge in the unique needs of students with an autism spectrum disorder, SED awarded three-year grants to 17 NYS colleges and universities and graduate school programs with teacher training programs or paraprofessional training programs. Each of these colleges has developed and is now offering courses relating to the education of students with an autism spectrum disorder, both on an inservice and preservice level.

The 17 colleges and universities awarded grants to develop and deliver courses and inservice training in the education of students with autism include:

Autism Distance Education Network:

Through distance-learning media, the SUNY at Albany is offering a certificate program focused on the education of children with autism and related disabilities. The program consists of a series of three courses. Each three-credit course is offered at both the undergraduate and graduate level, with a total of nine credits leading to a certificate in Autism. Courses are offered through regular classroom or CD-ROM/online instruction or through video-teleconference at sites throughout New York State. To date, over 500 educators and parents have completed parts of the sequence. The Autism Distance Education Network is a project funded, in part, by SED.

Effective Instructional Programs for School-Age Students with Autism

SED has identified five school-age programs with demonstrated research-based effective instructional practices for students with autism that promote teaching towards the learning standards. These include positive behavioral supports and strategies, inclusion programs, instructional approaches to teach social skills, instructional approaches and teaching methods, family involvement and support, parent counseling and training programs, transition and generalization strategies, and/or programs and services to promote transition to adult services. The selected schools include:

These schools have been awarded grant funds for July 1, 2003 to June 30, 2004 to support replication activities in other schools.

Continuum of Services: Development and Expansion

The number of children identified with autism has steadily increased over the past few years. Correspondingly, there is a need to ensure that schools are prepared to provide a continuum of services to these children. SED has awarded grants to the New York City Board of Education and to other regions of the State where there was an identified need to expand the continuum and quality of services available to students with autism. As a result of these grants, a continuum of quality, research-based educational programs for school-age students with autism have been developed in regions where such programs were not previously available.

Early Identification and Intervention for Children with Autism

Current research supports the need for early identification of children with autism spectrum disorders and the provision of appropriate education programs and services to support their learning and development. Physicians and family care providers have a primary role in assisting families to identify the needs of their children in order to obtain appropriate supports. In collaboration with the American Academy of Pediatrics, New York State Chapter, SED developed a brochure for health care providers regarding the early identification of young children with autism. This brochure also provides important information to parents on the early identification of children with autism and sources of referral and information to promote early intervention.

Assessment of the Availability and Effectiveness of Programs for Preschool Children with Autism

In response to Chapter 405 of the Laws of 1999, SED contracted with SUNY at Albany and its funded program NYAN, to conduct a study on the availability and effectiveness of preschool programs for students with autism spectrum disorders. This study was conducted from December 2000 through March 2002. The following is SED’s summary of the study, including recommendations.

 

Questions regarding this report should be directed to Rebecca Cort, Ed.D., Deputy Commissioner, New York State Education Department, Office of Vocational Educational Services, Special Education Policy, Planning and Partnerships, Room 1606, One Commerce Plaza, Albany, New York 12234.


REGIONAL ANALYSIS

Following is a summary of regional findings, excerpted from the NYAN Report on the Availability and Effectiveness of Preschool Programs for Children with Autism in New York State to facilitate regional comparisons. Each of the sixty-two counties in the State were categorized into one of ten regions: New York City, Long Island, Hudson Valley, Upper Hudson Valley/Capital District, North Country, Mohawk Valley, Central, Southern Tier, Finger Lakes and Western New York. The section "interpretation of summary findings" for each region is taken verbatim from the NYAN study. These regional findings should be interpreted consistent with the study methodology and definitions reported in pages 5-8 of this report.

REGION: NEW YORK CITY
Bronx, Manhattan, Kings, Richmond, and Queens

Interpretation of Summary Findings:

REGION: LONG ISLAND
Nassau and Suffolk Counties

Interpretation of Summary Findings:

 

REGION: HUDSON VALLEY
Dutchess, Orange, Putnam, Rockland, Sullivan, Ulster, and Westchester counties.

Interpretation of Summary Findings:

REGION: UPPER HUDSON VALLEY/CAPITAL DISTRICT
Albany, Columbia, Greene, Rensselaer, Saratoga, Schoharie, Schenectady, Warren, and Washington counties

Interpretation of Summary Findings:

REGION: NORTH COUNTRY
Clinton, Essex, Franklin, Hamilton, Jefferson, Lewis and St. Lawrence counties.

Interpretation of Summary Findings:

REGION: MOHAWK VALLEY
Montgomery, Fulton, Oneida, and Herkimer counties

Interpretation of Summary Findings:

REGION: CENTRAL
Cayuga, Cortland, Madison, Onondaga, and Oswego counties

Interpretation of Summary Findings:

REGION: SOUTHERN TIER
Broome, Chenango, Chemung, Delaware, Otsego, Schuyler, Steuben, Tioga, and Tompkins counties

Interpretation of Summary Findings:

REGION: FINGER LAKES
Genesee, Livingston, Monroe, Ontario, Orleans, Seneca, Wayne, and Wyoming counties.

Interpretation of Summary Findings:

REGION: WESTERN
Allegany, Cattaraugus, Chautauqua, Erie, and Niagara counties

Interpretation of Summary Findings:


Footnotes:

1 - Crimmins, Daniel B.; Sullivan, Colleen; Durand, V. Mark; Rafferty, Yvonne; Kaufman, Karin. Report on the Availability and Effectiveness of Preschool Programs for Children with Autism in New York State. A copy of this report is available by contacting the New York State Education Department, VESID, Room 1624, One Commerce Plaza, Albany, NY 12234.

2 - This number does not include preschool children with autism that are served by agencies or approved programs, which provide only related services and/ or SEIT services.

3- The difference in the projected estimates of program directors and CPSE chairpersons may be attributed to program directors’ knowledge of the students they serve who are more likely to observe the more subtle manifestations of autism in a child because they see the children on a day-to-day basis.

4-Effectiveness was rated on a scale of 0 to 3 (no evidence – clearly evident) based on evidence of quality indicators as assessed by the New York State Autism Program Quality Indicators.