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This
Technical Assistance Brief on acquired brain injury is intended to:
provide a clear, detailed
understanding of the disability;
describe some vocational
rehabilitation services that can be particularly effective; and
identify specialized
resources that might be particularly useful.
The Key Points
are intended brief summaries that precede and highlight the main points of each section.
The narrative sections following the key points provide a detailed discussion of the
points. For issues related to VESID policy, the policy sections of the Vocational
Rehabilitation (VR) Manual should be consulted. The Technical Assistance Brief is not
vocational rehabilitation policy or a prescription for services. |
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Section
I: Acquired Brain Injury and Its Implications Key Points |
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Acquired brain injuries include traumatic
brain injury, as well as brain injuries resulting from many other diseases or conditions
that directly affect brain function.Click here for more information on the Definition.
Cognitive effects (e.g. impaired memory,
attention, concentration, processing speed and problem-solving) are typically experienced
by the person with a brain injury. A brain injury can also effect emotions, behavior and
the executive functions (e.g. planning, organizing, initiating, inhibiting,
self-monitoring actions). Click here for more information on Cognitive
Effects.
Brain injury results in a diverse array of
abilities and deficits in each person. Click here for more information on Diversity of Abilities.
Pre-injury life factors and abilities need
to be carefully considered during the entire rehabilitation process. Click here for more
information on Pre-injury Life Factors.
Research has shown that individuals with
brain injury who are more engaged in the planning and other steps in the rehabilitation
process tend to have better employment outcomes. Click here for more information on the Rehabilitation Process..
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Section
II: Effective Strategies and Approaches for VR Services Key Points |
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The VR counselor plays a critical role in
assisting the individual with a brain injury in navigating and obtaining essential
community services that lead to the employment goals. A coordinated system of care and
support is often missing, putting the person at risk for "dropping out" of
services or not benefiting from available services. Click here for more information on the
Role of VESID Staff.
Research and feedback from consumers
and experts in brain injury point to other effective strategies and approaches when
providing vocational rehabilitation to individuals with brain injury. The opportunity to
participate in vocational activities strongly related to personal interests is
particularly relevant for individuals with brain injury. Motivation and cognitive
performance are likely enhanced by the value placed on the activity by the individual.
Studies suggest that individuals with
brain injury who are more aware of their residual strengths and weaknesses and the steps
in the VR process, are more likely to be employed at the time of closure.
Assessments (e.g. neuropsychological
evaluations) need to address vocationally relevant questions which can serve as the basis
for developing a solid vocational strategy. Click here for more information on Assessment.
Community-based situational
assessments are valuable opportunities for individuals with brain injuries to test
interests and learn skills in real work settings. Community-based situational assessments
(with support services) facilitates the learning process for the consumer with a brain
injury, the family (when appropriate), and vocational rehabilitation providers. Click here
for more information on Community-Based
Situational Assessments.
A person-centered planning approach (e.g.
Personal Futures Planning) engages the consumer, and when appropriate, family members, in
making meaningful choices in developing and supporting viable employment plans. Click here
for more information on Plan Development
& Implementation.
Cognitive and behavioral strategies are best
developed, learned and practiced as part of everyday training and employment activities.
Services may be needed over an extended period of time since the learning process may take
longer after a brain injury and the vocational interventions and services may be more
complex.
Compensatory strategies, environmental
modifications or other workplace accommodations need to be practical and consistently
available to enhance performance on essential work tasks. Cognitive remediation;
developing compensatory strategies for improving cognitive processes and compensating for
deficits; learning or relearning employment skills; and facilitating social and emotional
adjustment - need to be integrated into the training and employment process. Click here
for more information on Cognitive Functions and
Developing Compensatory Strategies.
Research suggests that support in the work
environment seems to be the most important predictor of ongoing vocational success.
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Section III: Employment Supports and Specialized Resources Key
Points |
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Employment supports have been found to be
the best predictor of Vocational success for persons with brain injury. Supports help the
person learn and perform on the job and on the everyday activities that make working
possible. Click here for more information on Employment
and Community Supports.
Job coaches can provide essential assistance
in learning the job, dealing with the social demands of the workplace, and figuring out
and using job-related compensatory strategies, environmental modifications or other
accommodations. Click here for more information on Job Coaching.
An identified staff person as a natural
support "resource" for the person with a brain injury, once job coaching has
been completed, is essential. This "resource" can provide on-going
problem-solving and feedback to the person. Click here for more information on a Job Coach.
Counseling and family interventions can help
the person with emotional and behavioral issues and can contribute significantly to the
person's ability to sustain employment. Click here for more information on Counseling.
Home and Community-Based Services (HCBS)
Waivers can complement vocational rehabilitation (VR) services to achieve more successful
outcomes. The availability of other community resources, such as health care, housing,
transportation and social supports is often critical to establishing a successful
employment plan. For example, the Medicaid waiver programs, described below, can often
provide the person with a more comprehensive range of services than would otherwise be
available. Click here for more information on Home and Community-Based
Services (HCBS) Waivers Programs.
Benefits counseling provides options for
individuals to use work incentives to increase earned income without losing essential
public or private benefits. Click here for more information on Benefits Advisement.
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Acquired Brain Injury
and Its Implications
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Acquired brain injury refers to damage or destruction of
brain tissue due to trauma or a wide range of medical conditions, e.g. anoxia, poisoning
or aneurysms. It does not include disabilities from neurological impairments that may
occur at or before birth such as cerebral palsy or mental retardation. Traumatic
brain injury refers to damage or destruction of brain tissue due to a blow to the head or
violent shaking of the head, such as occurs in assault, a car crash, a fall or similar
incidents. Even a "minor" injury could result in cognitive, emotional and
physical impairments.
Traumatic Brain Injuries
Closed Head Injury
After a closed head injury, damage to the
brain can occur either in specific brain areas (due to bruising, bleeding, and/or
subsequent reduction of oxygen to critical parts of the brain) and/or can be diffuse, i.e.
located throughout the brain (due to stretched or destroyed axons).
Damage occurs because the blow to the person's
head whips it forward and back or from side to side, causing the brain to collide at high
velocity with the bony skull in which it is housed. Specific areas of the brain - most
often the frontal and temporal lobes - are damaged because of this harsh shaking or
rotating of the brain tissue within the skull. This type of damage can sometimes be
detected through MRI or CT scans.
In addition to focal damage, the rapid
movement of the brain can stretch or injure the axons of neurons - the long threadlike
arms of nerve cells in the brain. Axons link cells to one another and link various parts
of the brain to each other. Diffuse axonal injury interrupts functional communication
within and between various brain regions. However, this type of diffuse damage often
cannot be detected through currently available imaging technology.
A brain injury can be mild, moderate or
severe. The extent of the injury can sometimes, but not always be measured by: the length
of time the person is either unconscious or dazed and confused; the extent of their memory
loss surrounding the onset of injury; and the location and extent of the observed tissue
damage to the brain.
Brain injury can also occur due to the
cumulative effect of multiple blows to the head, i.e. concussions, over a period of time.
In these situations, a single event may not result in the person becoming symptomatic, but
the cumulative effect of multiple "blows to the head" may result in impairment.
Open Head Injury
Open head injury, the second type of TBI,
occurs when the skull is penetrated. A bullet wound to the brain is an example of an open
head injury. Damage following open head injury usually is focal. Sometimes the effect on
the individual's functioning is more limited because damage is not spread throughout the
brain. But often the effects are the same as in closed head injury.
In some instances of either open or closed
head injury, a loss of consciousness occurs following a TBI. The period of loss of
consciousness can last for anywhere from a few minutes to several months. Sometimes loss
of consciousness does not occur at all, and only a sense of confusion, dizziness or the
like signifies the brain's immediate reaction to trauma. Such events can be momentary to
several hours or days in duration.
Other Acquired Brain Injuries
In addition to traumatic brain injury, there
are numerous other types of events that can lead to an acquired brain injury, such as
stroke, aneurysm, anoxia, encephalitis, brain tumors, brain toxins (e.g. overuse of
alcohol or drugs) or other conditions. These types of brain injuries can have similar
effects on a person's cognitive, physical and behavioral functioning, depending on how and
to what extent the damage to brain tissue has occurred.
Incidence
It is estimated that between 5% and 7% of the population of
the United States have been treated for a traumatic brain injury. There tends to be higher
incidence of traumatic brain injury in younger age groups, particularly young adult males.
These individuals tend to have limited work histories.
Prevalence
The Centers for Disease Control estimates that 5.2 million
Americans are living with some degree of disability caused by TBI.
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What is the Impact of a Brain Injury on the Person's Life? |
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A wide range of cognitive, physical, emotional and behavioral
impairments may follow brain injury. Physical, i.e. motor, and basic sensory functions can
be affected, as well as the functioning of multiple (e.g. hormonal, endocrine) body
systems. Cognitively, individuals with brain injury may have subtle to significant
impairments in their perception, language, attention, concentration, information
processing, learning and/or memory.
The
direct effects of brain injury can be complex and diverse within any one individual and
will vary greatly from one person to the next. Some individuals who have experienced a
brain injury are highly aware of these effects; others may be unaware of them, even with
feedback from others.
Executive Functions
Executive function deficits are common and associated with
damage to the frontal lobes of the brain. These impairments can have marked impact on a
person's ability to initiate, plan, organize and complete everyday and higher level,
work-related tasks. They may hinder the person's ability to follow-through with
suggestions, to use compensatory strategies, and to inhibit impulses to act
inappropriately.
Executive function deficits may be
inaccurately perceived as a lack of interest in or motivation for services.
Executive
functions include cognitive abilities related to:
gaining insight into strengths and
limitations;
goal setting;
planning and organizing;
initiating tasks;
self-control or self-inhibiting behavior;
monitoring and evaluating performance;
problem-solving; and
transferring newly acquired skills to
alternate settings or situations.
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Emotional Behavior and Behavior
Patterns
The injury can modify the individual's emotional behavior and
overt behavior patterns. Emotional changes may include depression, anxiety and problems
with substance abuse. Behavioral problems include difficulties with emotional control and
problems with controlling anger and aggression. Alternately, the person may have a
flat affect and appear unmotivated.
Fatigue and Other Effects
Fatigue can also become a significant factor, particularly for
employment. The individual may experience significant physical and/or mental fatigue which
may need to be accommodated. Residual deficits can also affect a person's reaction to
light, sound, taste or smell. Seizure disorders may also be a factor and medication side
effects or prohibited activities need to be considered.
Learning
Finally, for a person with an acquired brain injury,
pre-injury learning may be intact but new learning can be affected. During the vocational
planning process, it is important to assess how the individual learns and applies new
information. Vocational situations that draw on pre-injury learning are more likely to be
successful for some individuals.
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Implications for Vocational Rehabilitation (VR) |
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The interaction among the person, the impact of the injury and the
environment present a challenge to vocational rehabilitation. The implications for
employment are a function of the nature and extent of cognitive, behavioral and physical
impairments, combined with the personality and characteristics of the individual, the
personal resources they possess in coping with the effects, and the supports available in
the workplace.
The severity of the injury and the resulting effects may not accurately
predict the impact on functional impairments in every day activities, especially on the
demands of a particular job. For example, a "mild" injury could have substantial
impact on a person's ability to perform a particular job, while the impact of a severe
injury on some types of work could be limited.
Even when the brain injury leads to reduced functioning, there are
remaining areas of strength and interests which also help define the person's
capabilities, as does his or her social context.
The person's ability to identify
their residual cognitive strengths and weaknesses is important to consider when providing
employment services. Lack of awareness is a common difficulty that leads to frustration as
the person is not aware of his/her limitations. Consequently, he/she remains unaware of
the need to compensate or how to compensate for limitations.
Vocational
service providers cannot assume that the person's life started after brain injury. It is
important to explore the past with the person and weave this information into the plan.
The person may need to gain a broader awareness of "who you are now" versus
"who you were" prior to injury.
Thus, pre-injury hopes and dreams need to be examined within the context
of post-injury strengths and weaknesses. Through counseling and vocational experiences, he
or she can embrace a new vocational direction.
Recovery
from brain injury is a process, not an event that is time-limited. Individuals and their
families or employers will need support and services over this period of time if the
vocational process is to result in enabling the person to become engaged in a meaningful
work role. Furthermore, decisions about workplace supports often require flexible
exploration in the workplace and frequent adjustments over time.
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Effective Strategies and
Approaches for VR Services
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A
person with brain injury who is reentering the community may have a range of needs that
have to be identified and addressed if the person is to achieve an employment outcome.
Developing multiple options and networking with a broad range of community resources is
often necessary to achieve a successful employment outcome.
The counselor needs to develop a strong
network that links the consumer to a range of community services that meet his or her
unique needs. Navigating successfully through the network of community service providers
and forming a coordinated team of providers will enhance the successful employment of a
person with a brain injury. |
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Individuals with brain injury
typically have a complex and unique profile of abilities and functional deficits. There
may be marked variations in intellectual functioning between and within different areas,
resulting in a profile with marked strengths, as well as significant gaps in knowledge or
abilities. Assessment is a learning process that requires mutual cooperation and
meaningful feedback to be effective.
Information obtained through formal
assessment needs to focus the impact of the brain injury on everyday functioning of the
individual: What do the results of the assessments mean in terms of what the person can or
cannot do in a work setting?
Assessment should also define what supports
should be provided to the individual to enhance strengths and overcome or work around
limitations. There is usually a need to experiment with the potential supports,
modifications and/or strategies that will enable the person to meet the essential
performance demands of the work situation.
What questions can be asked when referring for an assessment?
How well does the person learn and remember?
What types of information does the person
recall?
How aware is the person of his/her deficits?
Under what circumstances is information best
learned and/or tasks performed?
How well does the person concentrate? How
distractible is the person?
Can the person be expected to consistently
maintain performance on work related tasks?
What type of work environment would be
optimal?
What environmental modifications and/or
accommodations are recommended?
How can the person be expected to form and
manage work and social relationships?
Is the person likely to become agitated? Under
what circumstances? What types of interventions are suggested in these situations?
How can we best assist the individual to use
strategies that will improve performance on work-related tasks? What are the strategies?
What level of support is needed to perform
essential tasks?
How well does the person respond to feedback?
How does the person respond to assistance from
others?
What is the person's stamina or endurance on
cognitive tasks?
What is the examiner's confidence that their
findings will apply to work settings?
Many of these questions need to be answered in
the context of an actual work environment to provide valid information. |
Neuropsychological Assessment
Often the neuropsychological assessment can be
a starting point for the counselor to work with the consumer and the neuropsychologist
(and others involved in providing services) to organize a situational assessment, develop
compensatory strategies and related cognitive supports, and to solve problems that impede
progress. The counselor needs to gather any previous neuropsychological reports and
determine if a current report would benefit the consumer in the employment planning
process.
What to Specify in the Referral to the
Neuropsychologist
Provide information that links the profile
of cognitive strengths and weaknesses to the individual's day-to-day functioning in the type
of training or work environment that they are interested in pursuing.
Provide recommendations that address the
types of compensatory strategies that might be helpful and the nature and extent of any
needed remediation.
What Questions Can Be Asked When
Referring for an Assessment? can serve as guide when making referrals for
neuropsychological assessments.
Community-Based Situational Assessments
Community-based situational assessments are
particularly relevant for persons with brain injury since research has shown that
assessments within the actual life context yield more valid information than
"decontextualized" assessments. In addition, some individuals may need to visit or
try out their former position before considering other options
The process starts with talking with the
individual with brain injury and trying out job situations to see what the person can do in
certain types of jobs.
Situational assessments provide critical
information on the way in which cognitive or behavioral impairments interface with job
performance.
They allow for more accurate observations of
many traits associated with successful employment, such as:
the efficacy of strategies and interventions
to improve performance (e.g. compensatory strategies);
ability to solve problems inherent to the work
being performed;
ability to cope with the stresses inherent to
the work situation;
ability to perform job-related tasks and
consistency of follow-through;
interpersonal skills and responses to feedback
and supervision;
ability to maintain focus (e.g. fatigue;
distractibility; or impulsivity); and
environmental issues (e.g. noise, lighting,
proximity to people).
Community-based situational assessments can
be done at any point in the rehabilitation process but are most valuable early in the
process to help with plan development after an individual is determined eligible for
services. Community-based situational assessments are sometimes available from community
rehabilitation providers who offer supported employment services or vocational evaluation.
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Plan Development & Implementation |
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- Actively
engage the person in the process of choosing and setting personally meaningful goals.
Enable individuals to choose and negotiate a
plan of services by involving significant people, both service providers and family
members, in the planning process, as they are often able to make significant contributions
to the development of the person's "vision" for the future.
Conduct structured planning meetings to
facilitate this type of plan development process.
Enlist the support of the consumer and
significant people in his or her life. As a result, the consumer is more likely to take
the steps and have the supports necessary to act on the plan. Family members often provide
substantial support during implementation.
Provide regular updates on progress and
problems via conferences that include the consumer, family members and others essential to
plan implementation. Regular communication encourages the family to play a positive role
in the consumer's efforts to achieve meaningful employment.
NOTE: Family counseling intervention can be a
useful vocational rehabilitation service in helping the family to play a positive role.
(Link to Counseling section.)
Redefine objectives within the plan. For
some people with brain injury, achievements must be defined so that smaller increments are
acknowledged, providing a positive experience to the person with brain injury.
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Cognitive
Functions and Developing Compensatory Strategies |
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Strategies
to enhance residual skills or compensate for deficits need to be developed that meet the
individual's needs in a particular training or work setting. VESID staff may need to
include the development of compensatory strategies as part of the employment plan.
As described above, an individual with brain
injury often will have cognitive difficulties that interfere with participation in
employment services. Compensatory strategies, environmental modifications, training or job
modifications or other accommodations can be developed to enable the individual with a
brain injury to learn new work skills or perform the essential aspects of a job at an
acceptable performance level.
In many circumstances, cognitive remediation
services are helpful in enabling the individual to regain or improve functional cognitive
abilities and learn compensatory strategies as part of the rehabilitation process.
The unique strengths and deficits of each
individual in the context of their respective work or training environment must be
carefully and creatively considered in developing any effective compensatory strategies or
environmental modifications.
In addition to learning specific strategies,
the goal is to help the individual to become more strategic in their approaches to
learning and not simply have them acquire one or more compensatory behaviors.
Related Training/Supports to be
considered:
Travel training from occupational
therapists, job coaches or other community resources may also be necessary or specialized
transportation.
Assistive technology or creative use of new
technology products.
The following tables are provided as examples,
but not as "prescriptions". Each strategy must be developed with an individual
for the particular situation or task where a support, strategy or modification may be
needed. |
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Chart #1
Examples of Compensatory Strategies |
| Cognitive
Challenge |
Possible
Intervention |
| Orientation |
Keep a calendar for appointments, to-do lists,
checklist, phone #'s, etc. |
| Attention/Concentration |
Ask for clarification and step by step
instructions when necessary. Present new information slowly. |
| Visual Perceptual
Process |
Provide orientation to written documents or
screens/fields on a computer screen. |
| Organization |
Follow an established, set process, organized
checklist or schedule for completing certain tasks. Do one thing as a time. |
| Memory |
Use a tape recorder to remember information
provided in presentations or meetings. Take notes. Summarize information. Organize notes. |
| Problem-Solving |
Depending on the task, use a decision table or
chart to solve recurring problems. |
| Self-monitoring |
Keep a schedule or checklist of work tasks
necessary to complete. Check-off completed items. |
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Chart
#2
Examples of Environmental Modifications or Accommodations |
| Cognitive
Challenge |
Possible
Intervention |
| Orientation |
Organize work materials or set up in a
consistent manner. Keep a calendar with schedule and daily tasks. |
| Attention/Concentration |
Minimize distractions through noise control or
visual barriers. |
| Visual Perceptual
Process |
Use high contrast materials to complete
certain tasks. |
| Organization |
Use graphics, checklists or charts to outline
essential job functions. Keep files. |
| Memory |
Use a planner pad/appointment book to track
meetings, goals and "to do" lists. |
| Problem-Solving |
Identify staff as "resource" people
to help solve certain problems (natural supports). Plan and structure each day. |
| Self-monitoring |
Keep a checklist of tasks that need to be
completed daily. |
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Employment Supports and
Specialized Resources
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Employment and Community Supports |
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Employment and Community Supports
Employment supports can be any service or strategy that
enables the person with a brain injury to engage in employment and/or to increase earned
income. A few of the employment supports that may be of significant value to some
individuals with brain injury are job coaching, counseling, the Home and Community-based
Services Medicaid waivers and benefits advisement.
Job
Coaching
Ideally, a skilled job coach can also be
effective as part of a team approach, to help the individual with brain injury apply
compensatory strategies for cognitive, physical and behavioral functions and make the
necessary environmental modifications or other accommodations to be successful in the work
situation. For person's with brain injury, a cognitive remediation specialist may be able
to train or consult with the job coach to develop strategies for supporting the
individual.
Job coaching usually refers to the
training of an employee by an approved specialist, who uses structured intervention
techniques to help the employee learn the job tasks to the employer's specifications.
A job coach can work
directly with an individual with brain injury at a training or work site to help to orient
co-workers or supervisors to a possible role they might play in supporting the person with
a brain injury.
In addition to work site training, job
coaching may include related situational assessments, job development, counseling,
advocacy, travel training and other interventions needed to maintain employment.
In some circumstances, coaches can be used to
provide direct hands on supports outside of the job site, in the community. For example, a
coach can help with assisting a person in a training/education program to organize
information and scheduling tasks to stay on track.
Counseling
Brain injury and the resulting impairment of
executive functions may increase problems with behavioral and cognitive self-regulation.
Counseling interventions with the individual and, as appropriate, the family, may be
needed to address with these adjustment and self-regulatory issues to achieve the
employment outcome.
Decision Guide for Counseling
Specialized counseling can be an effective intervention when:
counseling and guidance provided as
part of the vocational rehabilitation process is not able to address the scope of adjustment
issues;
the challenges that the individual faces
cannot be met due to the level of self-awareness and/or adjustment;
adjustment issues for both the individual
and the family are critical to achieving the objectives of the employment plan;
the person with a brain injury needs to
align their hopes and dreams with a realistic view of what they can do; and
problems with emotional, behavioral or
cognitive self-regulation are interfering with job performance.
What is
Self-Regulation?
Self-regulation is a pattern of behavior characterized by thoughtful planning,
careful monitoring and evaluation of a plan of action, and strategic revisions in the plan
in the event of difficulty. |
Specialized Counseling for Individuals
with Brain Injury
Counseling interventions for individuals with brain injury include:
structured goal and action planning,
intervention in the context of everyday
situations,
collaboration with other professionals,
service providers and significant people in the person's life,
family counseling, and
supportive/peer counseling.
Structured goal and action planning
refers to helping the person to experience positive emotional states related to socially
acceptable action strategies. Individuals with brain injury have to be involved in
selecting the goals and action strategies that will compensate for cognitive or behavioral
limitations. The action strategies must be taught to the individual, often requiring
frequent cueing and practice in the context of everyday challenges until the individual
can use the strategy independently.
Providing the counseling intervention in
the context of personally meaningful activities, settings and interactions is more
likely to have a lasting effect for people with cognitive and behavioral impairments. For
this reason, collaboration with other service providers, employers and family
members to support action strategies is often essential. It allows the individual with a
brain injury to use the strategy while engaged in personally meaningful, chosen life
activities.
Applying these interventions to cognitive
remediation, the role of the counseling or family intervention specialist is to
train the individual and his or her primary support system on action strategies that
relate to the attainment of employment, academic, social and community goals. In addition,
family-counseling intervention can also help the family to deal with their respective
adjustment issues which will have a substantial impact on their ability to support the
individual with a brain injury. The family's understanding of brain injury and their
ability to actively support the person, e.g. in getting and staying organized, can have a
direct impact on the person's participation in vocational services.
Substance abuse issues can be a
complicating factor for some individuals with brain injury. Individuals may have a
pre-injury history of substance abuse or begin use following the onset of the brain
injury. It is important to deal directly with these issues by connecting the person to
effective treatment programs that understand brain injury as well as substance abuse.
Alcoholism and substance abuse professionals may need to become part of the overall
rehabilitation "team" to better understand the dynamics and issues related to
brain injuries. In many instances, a coordinated team effort is required if the survivor
who is a substance abuser is going to benefit from treatment services. Alcoholics
Anonymous and Narcotics Anonymous can also play a role in recovery.
In addition to the above counseling
interventions, other community resources can provide valuable supportive counseling
to individuals with brain injuries and their families:
The Brain Injury Association of New York
State (BIANYS) has a network of Family Advocacy, Counseling and Training Services (FACTS)
Coordinators who provide supportive counseling and on-going emotional support for the
individual and family (for individuals injured prior to age 22). There are about 18
coordinators covering the state. For the FACTS Coordinator in your area, call 1-800-228-8201
or link with the BIANYS website under Resource Links.
Home and Community Based Services Waiver Programs
New York State Department of Health (DOH) and
the NYS Office of Mental Retardation and Developmental Disabilities (OMRDD) have
federally-approved programs to expand services covered by Medicaid to include care for
individuals with TBI in non-institutional, community-based settings. This expansion, known
as Medicaid "waivers", allows New York State to offer comprehensive
services tailored to meet individual needs. The waivers increase the opportunity for
individuals with brain injury to live in the community and take control of their
lives.
The primary benefit of the waiver is the
availability of Medicaid reimbursable services which can be used by the waiver participant
to live safely in the community, while also respecting the individual's right to choice
and risk. A service plan is developed for each waiver participant. These service plans,
which are reviewed and re-approved every 6 months, list all necessary sources of support,
including natural supports, federally-funded services, non-Medicaid services, Medicaid
services and HCBS/TBI waiver services. The availability of services and supports through
the waivers can complement and enhance services provided by VESID.
Eligibility for DOH's HCBS/TBI Waiver
To be eligible for benefits under this waiver, an individual must be:
diagnosed with TBI or a related condition;
eligible for nursing facility level of care;
enrolled in the Medicaid program;
18-64 years old (individuals injured before
the age of 22 may be eligible for services under a waiver operated by the Office of Mental
Retardation and Developmental Disabilities);
given a choice of living in the community or
in a nursing facility;
in a living arrangement which meets the
individual's needs or be capable of attaining such an arrangement outside the institutional
setting; and
able to be served under the TBI Waiver and
New York State Medicaid Plan.
What
Services are available under the HCBS/TBI Waiver?
Services available under the HCBS/TBI waiver include:
Service Coordination
Independent living skills training and
development
Structured day programs
Substance abuse programs
Intensive behavioral programs
Community integration counseling
Home and community support services
Environmental modifications
Respite Care
Special Medical Equipment
Transportation
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These waiver services are provided only when
other available supports -- such as family, insurance, non-Medicaid programs -- are not
adequate and/or available to support an individual in the community. Waiver services are
provided in addition to the other Medicaid services available in New York.
Regional Resource Development
Specialists
Regional Resource Development Specialists (RRDS), contracted by the DOH, are
assigned to regions throughout the state, composed of several adjoining counties. They are
responsible for assisting in the implementation of the HCBS/TBI Waiver, helping the
individual to be aware of the choices of services and providers, especially the Service
Coordinator, and assuring that the philosophy of choice inherent in the HCBS/TBI Waiver is
maintained. For contact information for the RRDS in your area, call the DOH TBI Program
Office at (518) 478-1090.
There is a also a Housing Support program for
individuals who participate in the HCBS/TBI program. This program can provide funding for
purchasing needed household items and rental subsidies.
How the Waiver can Support Services
Toward the Employment Goal
It is important to understand that the resources of VESID, combined with the HCBS/TBI
waiver, can provide a comprehensive and coordinated program of supports and services for
an individual. The effective blending of these two resources can result in better
employment outcomes for individuals with brain injury.
Service coordination and team planning
sessions (e.g. personal futures planning) can occur through the waiver. The VESID
counselor can contact the wavier participant's service coordinator to assure maximum
coordination of services. Services that are considered "pre-vocational" or
"therapeutic" can also be provided.
For example, Independent Living Skills
Training through the HCBS/TBI Waiver can assist a waiver participant to maintain good
grooming habits, utilize a log book/schedule to remember appointments, improve money
management skills and be better able to solve everyday problems.
Specific services to address special needs,
such as an intensive behavioral program, can be also provided under the Waiver.
OMRDD Medicaid Waiver
The OMRDD Home and Community Based Waiver is also available to individuals who have
sustained their injury before age 22. Services funded through the waiver are organized
within the framework of the individualized services environment and include service
coordination, residential and day habilitation, respite, environmental adaptations, and
adaptive equipment.
OMRDD waiver services are consumer-driven and
designed, allowing participants to live in their own homes, a family care home, or an
individual residential alternative (IRA) and to receive support services paid for by
Medicaid, which are typically only available for persons living in intermediate care
facilities. Broadly, the scope of services includes housing supports, day supports, family
supports, individual supports and clinic services. Adult day supports provided under this
waiver include a range of employment options including supported employment in individual
jobs, enclaves or workstations in industry, mobile work crews and entrepreneurial models.
OMRDD has designated Traumatic Brain Injury
Coordinators in each of its DDSOs. For the name of the Coordinator in your area, you can
contact your local DDSO or call the OMRDD Special Projects Coordinator in the Upstate
Operations Office at (518) 474-8652.
Benefits
Advisement
The risk of losing benefits can inhibit
progress toward employment. Benefits planning and advisement can be provided to help the
individual gain the information necessary to make choices about work activity.
The individual needs an opportunity to
understand how work incentive provisions in Social Security and other public or private
programs can be used to the best advantage.
Benefits planning and advisement provides
reliable information on the impact of earned income on cash benefits and entitlement
programs that the person may depend on for overall income, including SSI, SSDI, Medicaid
and Medicare, private disability and "no fault lost wages". Benefits counseling
can help the individual with brain injury to make informed choices regarding working and
earnings and develop a plan that leads to greater economic self-sufficiency without
sacrificing essential entitlements until a solid financial foundation can be established.
This service is often available through independent living centers, legal services
offices, SSA-funded Benefits Planning providers, and other qualified community
providers.
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References
| Vocational Rehabilitation, Traumatic Brain Injury
and the Power of Networking, A Publication of TBI-NET, Mt. Sinai Medical Center,
August, 1995 |
| Moving On: A Personal Futures Planning workbook
for people with TBI available from the Research Center on Community Integration
of Individuals with TBI, Mount Sinai Medical Center, New York, NY (electronic link
below). |
| Traumatic Brain Injury: A Guidebook for Educators,
The University of the State of New York, The State Education Department, Office of Special
Education Services, Albany, New York 12234, 1997. |
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Related Topics in VR Policy
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