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What is Independent Living?
Independent Living means controlling and directing
your own life. It means taking risks and being allowed to succeed and fail on your own
terms. It means participating in community life and pursuing activities of your own
choosing. Independent Living is knowing what choices are available, selecting what is
right for you, and taking responsibility for your own actions.
For people with disabilities affecting their ability
to make complicated decisions or pursue complex activities, independent living means being
as self-sufficient as possible. It means being able to exercise the greatest degree of
choice in where you live, with whom you live, how to live, where you work, with whom you
work and how to use your time.
What Are Independent Living Centers?
- Consumer Controlled: Centers are run by a board of
directors, more than half of whom are people with disabilities.
- Community Based: Centers are
located throughout New York State in local communities.
- Available to All People with Disabilities: Staff,
board members, volunteers, and people served represent a broad cross-section of
disabilities.
- Non-Residential: Centers are not places to live,
nor do they own or operate places for people with disabilities to live.
- Non-Profit: Centers are approved for non-profit
status with the New York State Attorney General's office.
Who Does an Independent Living Center Serve?
- People with all physical and
mental disabilities.
- People with disabilities of all ages.
- Parents, spouses, siblings, and significant others
of people with disabilities.
- People with disabilities living in their own homes,
supported living arrangements, institutional settings, and elsewhere.
- School personnel
- Business and industry
- Local government agencies
- Human Service organizations
- Volunteer sector organizations
- Hospitals, health organizations, and the medical
community
- Civic organizations
What Services do Independent Living Centers Provide?
All Independent Living Centers provide a set of core
services geared toward promoting self-help, equal access, peer role
modeling, personal growth, and empowerment. The scope of services is
directed by individual and community needs. The core services are as
follows:
- Peer Counseling is provided between two or more
individuals with disabilities, to share ideas and experiences about
living with a disability, in order to gain greater awareness and
control over ones own life.
- Independent Living Skills Training teaches everyday
life skills and is often provided by people with disabilities.
Training may include budgeting, meal preparation, arranging
transportation, or personal assistance services, job seeking, and
self-advocacy.
- Information and Referral Services aim to provide
individuals with resources and options that may be necessary in
making informed choices about living, learning, and working
independently.
- Individual and Systems Advocacy addresses access to
equal opportunities in exercising social, economic, educational, and
legal rights. Independent Living Centers work with individuals,
community organizations, state/national networks; to promote full
inclusion of people with disabilities, and to improve the
implementation of existing laws: federal, State, and local.
Other services that are often provided include:
- Housing assistance
- Acquiring and maintaining appropriate benefits and
entitlements
- Architectural and communication barrier consultation
- Personal counseling that is non-clinical and short
term in nature to address individual goals
- Securing, learning how to use, repair, and maintain
equipment
- Assistance in registering to vote
- In-service training, workshops/seminars on
disability issues, disability laws and Independent Living philosophy
- Disability awareness training
- Developing Plans to Achieve Self Support (PASS) for
recipients of public assistance - SSI/SSDI
- Specialized training and services specific to
certain communities
How Do I Resolve Disagreements with
Independent Living Centers?
VESID recommends taking the following steps when
problems occur:
- Seek out supervisory staff at the Independent Living
Center to discuss your concern.
- Bring your concern to the attention of the President
of the Board of Directors of the Independent Living Center. The
Center can tell you how to contact the Board President.
- Contact the VESID Centers Administration Unit,
1-800-222-5627 (voice/TTY).
- Contact the Client Assistance Program (CAP) Central
Office at 1-800-624-4143 (voice/TTY, toll free).
How To Find Out More About Independent Living
VESID, Centers Administration Unit is
responsible for administering the New York State Independent Living
Program. For information about Independent Living Centers and programs
in New York State, contact:
Robert Gumson, Unit Manager
VESID
Centers Administration Unit
One Commerce Plaza, Room 1601
Albany, New York 12234
Phone: (518) 474-2925
Voice, TTY, Toll Free (800) 222-5627
You may also contact your local Independent Living
Center (ILC). See the ILC locations list
for a center near you.
What is NYSILC?
The New York State Independent Living Council, Inc.
is made up of representatives, a majority of whom have disabilities, from around the
State, who are appointed by the Board of Regents. It is a not-for-profit,
non-Governmental, consumer controlled organization which monitors the federally funded
Independent Living Centers in New York State, promotes the independent living philosophy statewide, and provides support and technical assistance to the entire network of
Independent Living Centers (ILC) in New York State which consists of 35
community-based, not-for-profit organizations run by and for people with disabilities.
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